Hi, Second time to write this. Regis' computer is in sick bay so we are in the hotel business center. Forgive typos please!
We checked in, registered and have visited the exhibit hall. Not all up and running yet, but enough to keep us busy.
We were thrilled to see a great representation of OC awareness information that was being published directly by a grant from Johanna's Law funding. Good news and great to see that happening!
They will also be preparing Public Service Announcements soon. We were thrilled to hear that there is and will be more information made available to the public on a national basis.
We suggested that they add to the symptom literature, "Prior to having any surgery see a gynecologic oncologist" They were happy to write down our advice and thanked us.
We purchased a video of a documentary featuring 3 OC Survivors and how they responded to their diagnosis and their life after and during treatment. It is 30 min. long and will be a good program for our Support Group.
Tonight we will review the program choices for tomorrow and make our choices.
See you then, Connie and Rina.
Monday, July 7, 2008
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